Jesy Nelson reveals why her twins' treatment for SMA was delayed in new Prime documentary
Jesy shares the emotional strain in her Prime Video documentaryJesy Nelson‘s new documentary will be an emotional watch as she opens up about her twin daughters having Spinal Muscular Atrophy Type 1 (SMA).
In the show, Jesy Nelson: Life Changing, the star reveals why treatment for her twin daughters was delayed. She shares the emotional strain in her documentary, which airs this Friday (July 17) on Prime Video.
Jesy’s daughters Ocean Jade and Story Monroe, who were born in May 2025, have the condition, which can cause muscle weakness.
Jesy Nelson’s documentary puts family fears in focus
According to The Sun, in the documentary, Jesy speaks about the impact of the delay while discussing her babies’ health. She does not hide how hard the situation has been.
In the documentary, Jesy says her daughter Story was rushed to hospital with pneumonia not long after being told about the twins’ diagnoses, just days before Ocean was stuck down by another illness.
Jesy says in the doc: “Not long after we got the diagnosis, they were booked in to have their treatment. Then Story got pneumonia and was really struggling to breathe.
“She started choking so we had to rush her into hospital. It breaks my heart because she’s so vulnerable.”
She adds: “That’s when we were told that she can’t have the treatment.”
As reported by The Sun, any delay in treatment increases the chance of permanent nerve and muscle damage. Heartbreakingly, it was decided that Story and Ocean were not well enough to receive the gene therapy treatment.
In the doc, Jesy says: “That was when she got given her breathing machine. She came home and then Ocean got ill.”
Elsewhere in the episode, Jesy’s now ex-partner Zion Foster, Story and Ocean’s father, admits: “I’m not equipped to deal with this. I’m out of my depth; emotionally, physically and mentally.”
Jesy Nelson tells fans documentary is ‘most heartbreaking series’
Jesy’s documentary comments underline the strain that comes with waiting for care.
Speaking on Instagram this week, ahead of the documentary’s airing, Jesy told her followers: “This is truly the most heartbreaking series I’ve ever had to make, and I urge you all to watch it.
“No future babies born with SMA should have to live their lives like this, I am so grateful for all of your continued support and I will keep on shouting about this until change is made.”
The singer has stayed in the public eye since leaving Little Mix.
This time, her latest project centres on motherhood. It also centres on the pressure of caring for two young children with serious health needs.
